For adolescents and young adults, going through cancer treatment can be really tough. Sometimes it’s unclear how things are going to turn out. There may be difficult conversations that young people want to have with family, friends and their healthcare team that they might not have the words for.
When there is so much uncertainty related to the future, being able to put words to their concerns can help young people feel more in control and have more of a say in their care and treatment.
When there is so much uncertainty related to the future, being able to put words to their concerns can help young people feel more in control and have more of a say in their care and treatment.
Voicing my CHOiCESTM
Voicing my CHOiCES™ is an advance care planning tool for young people, developed by a team in the United States to give young people a way to express the things that are important to them - their thoughts about how you want to be comforted, supported, treated, and remembered.
Advance care planning is a series of steps that a patient, their family and healthcare professionals can take to make sure that the patient’s values, choices and decisions can be communicated in the future, if they were no longer able to do so themselves. For adolescents and young adults these steps are often recorded in a booklet, such as Voicing my CHOiCES™
Advance care planning is a series of steps that a patient, their family and healthcare professionals can take to make sure that the patient’s values, choices and decisions can be communicated in the future, if they were no longer able to do so themselves. For adolescents and young adults these steps are often recorded in a booklet, such as Voicing my CHOiCES™
The Australian Voicing my CHOiCESTM
Together with local young people, parents and health professionals, our team have developed an Australian version of the Voicing my CHOiCES™ booklet. It features new content as well as changes to existing content to make it more suitable for the Australian context.
We are currently working on an exciting collaboration to make the Australian version of Voicing my CHOiCES™ available nation-wide. If you are interested in hearing more about the booklet, please contact Dr Ursula Sansom-Daly (ursula@unsw.edu.au).
We are also running a study to look at whether the new tool is helpful for Australians. If you are a young cancer patient or survivor and would like to be involved in helping us evaluate our new booklet, please read on!
We are currently working on an exciting collaboration to make the Australian version of Voicing my CHOiCES™ available nation-wide. If you are interested in hearing more about the booklet, please contact Dr Ursula Sansom-Daly (ursula@unsw.edu.au).
We are also running a study to look at whether the new tool is helpful for Australians. If you are a young cancer patient or survivor and would like to be involved in helping us evaluate our new booklet, please read on!
What this study aims to achieve
We have recently developed an advance care planning tool specifically for Australian young people. Our team needs assistance evaluating this new Australian version of the Voicing my CHOiCES™ tool. Having an Australian advanced care planning tool will ensure young people’s voices are heard if their treatment does not go to plan or takes an unexpected turn.
Would you like to be involved?
You are eligible, if you are:
- A young person aged 15-40 who currently has cancer
What does study participation involve?
- Read the information sheet and sign the consent form
- A face-to-face chat at one of our study sites
- Complete two brief questionnaires around four weeks apart
- Answering some quick questions through an app on your mobile for two weeks
Contact details
Ursula Sansom-Daly
Chief Investigator
Email: ursula@unsw.edu.au
Phone: (+612) 9382 3114
Holly Evans
Post-Doctoral Fellow
Email: holly.evans@unsw.edu.au
Phone: (+612) 9348 0547
Chief Investigator
Email: ursula@unsw.edu.au
Phone: (+612) 9382 3114
Holly Evans
Post-Doctoral Fellow
Email: holly.evans@unsw.edu.au
Phone: (+612) 9348 0547