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Educational experiences of children and adolescents with serious illness

Students with serious illness face many barriers that can prevent them from having the same educational experiences and outcomes as students without serious illness. As a result, students with serious may be more likely to fall behind academically, socially, and emotionally. 

What does this study aim to achieve?

The aim of this study is to examine the impact of serious illness on students’ academic, social and emotional factors within the school. We will also be investigating the school factors that prevent and the school factors that promote student wellbeing and educational functioning. This will inform the development of programs designed to improve the wellbeing and educational functioning of students with serious illness.

Who can participate?

This study is currently recruiting parents of a child who:
  • is currently attending primary school or high school in Australia or has graduated/discontinued school in the last 5 years
  • has been diagnosed with one of the following serious illnesses: cancer, persistent asthma, heart disease, kidney disease, cystic fibrosis or gastrointestinal disease, and
  • as missed at least 5 days of school in the last 12 months because of their illness
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What does study participation involve?

To participate in this study, we ask that you:

​The survey will take about 30 minutes to complete.

Contact information

If you have any questions at all, please feel free to contact Alistair Lum or Mary Burns by email or telephone:
  • Email – EduSwell@unsw.edu.au
  • Telephone: Monday, Wednesday and Thursday – (02) 9385 9870;
  • Telephone: Tuesday and Friday –  (02) 9385 2551

This study is supported by Ronald McDonald House Charities and the University of New South Wales