Improving end of life care for AYAs
Thank you for your interest in our study!
This survey is being run by Dr Ursula Sansom-Daly and her team at UNSW investigating how end-of-life (EoL) care and communication for adolescents and young adults (AYAs) with cancer is delivered by clinicians working with AYAs, and to obtain professional consensus around what their needs/preferences are for training in EoL communication with AYAs with cancer. We are looking for multi-disciplinary healthcare professionals who have treated at least five patients between the ages of 15-39 years who have died from cancer.
This survey should take you approximately 15-20 minutes to complete.
You will be asked questions about your demographic characteristics (e.g., your age, location); timing of EoL communication and psychosocial issues; and what type of EoL communication-training is most needed and preferred. Survey items will cover relevant content (e.g., timing of discussions; psychosocial issues at EoL; techniques for broaching difficult topics), and format issues (e.g, length/frequency of training; modality of training e.g., face-to-face, online, etc).
If you are interested in participating, please click below to access the full information statement and online survey.
If you would like any further information about the study please contact Dr Ursula Sansom-Daly via phone ((+612) 9382 3114) or email (firstname.lastname@example.org). If you experience technical difficulties while completing the survey, please contact the study research officer, Ms Holly Evans via phone ((+612) 9382 3118) or email (email@example.com)