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Click on the image (left) to watch A/Prof Claire Wakefield interviewed by the The Kids Cancer Project, providing details about the Re-engage program. You can also read more here. |
Follow-up care and technology
Long term follow-up care for survivors of childhood cancer is critical. However many barriers prevent survivors from receiving adequate follow-up care. Web-based technologies (known as ‘e-tools’) may help re-engage survivors with essential follow-up care. Survivors can use these programs to schedule health check-ups, communicate with their doctors, connect with other survivors and find out more about how to improve their long-term health.
To support survivors following their treatment, the Behavioural Sciences Unit are giving survivors the chance to trial an online program called ‘Re-engage’, including connection to an e-tool to help manage their care.
Your feedback will help us to improve the delivery of long term follow-up care for survivors of childhood cancer.
To support survivors following their treatment, the Behavioural Sciences Unit are giving survivors the chance to trial an online program called ‘Re-engage’, including connection to an e-tool to help manage their care.
Your feedback will help us to improve the delivery of long term follow-up care for survivors of childhood cancer.
What this study aims to achieve
The study aims to improve childhood cancer survivors’:
- knowledge of late effects
- adherence to recommended follow-up
- satisfaction with care
- health-related quality of life and self-efficacy
Would you like to be involved?
This study is currently recruiting people who meet the following criteria:
Alternatively, if you are a parent of a survivor who meets the above criteria, you may also be eligible to participate.
- are over 16 years of age;
- previously diagnosed with cancer at the age of 16 years or younger;
- completed all treatment and are currently in remission; and
- have not received cancer-related long term follow-up care in the past 2 years
Alternatively, if you are a parent of a survivor who meets the above criteria, you may also be eligible to participate.
What does study participation involve?
- You will be asked to participate in two online ‘live’ consultations with a clinical nurse consultant specialising in cancer survivorship (these should take up to 45 minutes each)
- Trial a personalised health management e-tool (a mobile application and/or website)
- Complete questionnaires before and after the consultations and using the e-tool, which we think will take about 20 minutes each to complete
To participate in the study, please:
- Read the Information Sheet (Parents click here; Adult survivors click here)
- Sign and return the Consent Form to Ms Christina Signorelli
Contact the study co-ordinator:
For more information, please contact the study co-ordinators:
Dr Christina Signorelli
Tel: 0432 798 382
E: c.signorelli@unsw.edu.au
Dr Christina Signorelli
Tel: 0432 798 382
E: c.signorelli@unsw.edu.au
How is this study supported?
This study is funded by Cancer Council New South Wales and the The Kids Cancer Project and supported by the Australian and New Zealand Children's Haematology/Oncology Group.