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Professor Richard CohnMBBS, FRACP,
Clinical Program Director - Medical and Diagnostics & Director Survivorship Program - Kids Cancer Centre Founding Medical Director - Behavioural Sciences Unit Phone: (02) 9382 1730 Email: [email protected]
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Overview
Associate Professor Richard Cohn founded the Behavioural Sciences Unit in 2001, recognising that until a cure for all childhood cancers has been
found, it is our mandate to improve hospital initiatives to better support
patients and their families from diagnosis to survivorship and
bereavement. He has championed the importance of research studies which cover all psycho-social and
behavioural aspects of paediatric cancer and worked to translate these research findings into clinical practice within the hospital.
Selected publications
Ziegler DS, McCowage G, Cohn RJ, White L. Long-Term Survival Following a Phase I/II Trial With VETOPEC for Solid Tumors in Childhood. Journal of Pediatric Hematology Oncology 2006; 28(1): 40 – 42.
Thambugala GM, Pereira J, Sugo E, Henry G, Cohn RJ. A case of solid and cystic papillary epithelial neoplasm (SCPEN) of the pancreas in an 11-year old girl: Imaging features with Pathological correlation. Australasia Radiology 2006; 50(4): 373 – 376.
Neville KA, Cohn RJ, Steinbeck K, Johnston K, Walker JL. Hyperinsulinemia, IGT and DM in survivors of childhood cancer: prevalence and risk factors. Journal Clinical Endocrinology Metabolism 2006; 91(11): 4401 – 4407.
Nair K, Goodenough B, Cohn RJ. Telephone support groups for isolated bereaved parents: a review of the literature and an example from Australian Paediatric Oncology. Illness, Crisis and Loss 2006; 14(4): 321 - 338.
Provenzano SC, Cohn RJ, Jones OD, Grant PW. Synovial sarcoma of the heart. Heart Lung Circ 2006;15(4): 278 – 279.
Radhakrishnan K, Rozenberg G, Cohn RJ. Unusual haematologic manifestations of mycoplasma pneumoniae infection. Journal of Paediatric Child Health 2007; 43(1-2): 80 - 82.
Trahair T, Andrews L, Cohn RJ. Recognition of Li Fraumeni syndrome at diagnosis of a locally advanced extremity rhabdomyosarcoma: implications for management. Pediatric Blood Cancer 2007; 48(3): 345 - 348.
Radhakrishnan K, Rozenberg G, Brighton T, Cohn RJ. Isolated Thrombocytopenia in Children - Thinking beyond ITP and Leukaemia. Journal of Paediatric Child Health 2007; 43(12): 80 - 82.
Petterson TE, Bosco AA, Cohn RJ. Aggressive Natural Killer Cell Leukaemia in a Paediatric patient presenting with Haemophagocytic Lymphohistiocytosis. Pediatric Blood and Cancer 2008; 50(3): 654 - 656.
Trahair TN, Vowels MR, Johnston K, Cohn RJ, Russell SJ, Neville KA, Carroll S, Marshall GM. Long-term outcomes in children with high-risk neuroblastoma treated with autologous stem cell transplantation. Bone Marrow Transplantation 2007; 40(8): 741 - 746.
Johnston K, Vowels M, Carroll S, Cohn RJ. Failure to Lactate: A possible Late Effect of Cranial Radiation. Pediatric Blood and Cancer 2008; 50(3): 721 - 722.
Beckett SM, Laughton SJ, Pozza LD, McCowage GB, Marshall G, Cohn RJ, Milne E, Ashton LA. Buccal swabs and treated cards: Methodological considerations for molecular epidemiologic studies examining pediatric populations. American Journal of Epidemiology 2008; 167: 1260 - 1267.
Goodenough B, Johnston K, Suneson Casey J, Foreman T, Cohn RJ. The priority of risk-based health care for Australian survivors of childhood cancer: Patient self-reports of concerns and the “Health Passport” initiative. Austral-Asian Journal of Cancer 2008; 7(1): 29 – 39.
Wilson CL, Cohn RJ, Johnson K, Ashton LJ. Tracing survivors of childhood cancer in Australia. Pediatric Blood and Cancer 2009; 52(4): 510 - 515.
Wilson CL, Cohn RJ, Ashton LJ. Survivors of Childhood Cancer: Issues and Challenges. When cancer crosses disciplines. Imperial College Press (London, UK) 2009; 1047 - 1076.
Wakefield CE, McLoone JK, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature. Journal of Pediatric Psychology 2010; 35(3): 262 - 274.
Satharasinghe K, Trahair TN, Barbaric D, O'Brien TA, Russell SJ, Cohn RJ, Marshall GM, Ziegler DS. False Positive MIBG Scans with Normal CT Imaging In High-Risk Neuroblastoma Patients. Journal of Clinical Oncology 2009; 27(34).
Schindler T, Yu C, Rossleigh M, Pereira J, Cohn RJ. False positive MIBG uptake in pneumonia in a patient with stage IV neuroblastoma. Clinical Nuclear Medical 2010; 35(9): 743 - 745.
Wilson CL, Cohn RJ, Johnson KA, Ashton LJ. Second cancers and late mortality among a cohort of childhood cancer survivors. Medical Journal Australia 2010; 193(5): 258 - 261.
Palmer SL, Hassall T, Evankovich K, Mabbott DJ, Bonner M, Deluca C, Cohn RJ, Fisher MJ, Morris EB, Broniscer A, Gajjar A. Neurocognitive outcome 12 months following cerebellar mutism syndrome in pediatric patients with medulloblastoma. Neurology Oncolology 2010; 12(12): 1311 - 1317.
Wakefield CE, McLoone JK, Butow P, Lenthen K, Cohn RJ. Parental adjustment to the completion of their child's cancer treatments. Pediatric blood and Cancer 2011; 4: 524 – 531.
Bandopadhayay P, Ashley D, Downie P, Kirby M, Cohn RJ, Sullivan M, Houlihan J, Hassall T. Intensified Systemic Chemotherapy, Second Look Surgery and Involved Field Radiation in Young Children with Central Nervous System Malignancy. Pediatric Blood and Cancer 2011; 56(7): 105 - 161.
McCowage GB, Alvaro F, Cohn RJ, Ziegler DS, Oswald C, Mrongovius R, White L. Treatment of Children With Poor Risk Solid Tumors by Further Escalation of the VETOPEC Regimen Including Very High Dose Cyclophosphamide and Peripheral Stem Cell Support: An Australian and New Zealand Children’s Haematology and Oncology Group Study. Pediatric Blood & Cancer 2011; 57(6): 958 – 964.
Best EJ, Gazarian M, Cohn RJ, Wilkinson M, Palasanthiran P. Once daily gentamicin in infants and children: A prospective cohort study evaluating safety and the role of therapeutic drug monitoring in minimizing toxicity. Pediatric Infectious Disease Journal 2011; 30(10): 827 - 832.
Barbaro PM, Johnston K, Dalla-Pozza L, Cohn RJ, Wang YA, Marshall GM, Ziegler DS. Reduced incidence of second solid tumors in survivors of childhood Hodgkin's lymphoma treated without radiation therapy. Annals of Oncology 2011; 22(12): 2569 - 2574.
Cohen J, Wakefield CE, Fleming CAK, Gawthorne R, Tapsell L, Cohn RJ. Dietary Intake after Treatment in Child Cancer Survivors. Pediatric Blood & Cancer 2012; 58(5): 752 – 757.
Wakefield CE, Butow P, Fleming CAK, Daniel G, Cohn RJ. (2012). Family information needs at childhood cancer treatment completion. Pediatric Blood and Cancer 2012; 58: 621 - 626.
Sansom-Daly UM, Peate M, Wakefield CE, Bryant RA, Cohn RJ. A Systematic Review of Psychological Interventions for Adolescents and Young Adults Living With Chronic Illness. Health Psychology 2012; 31(3): 380 - 393.
McLoone JK, Wakefield CE, Butow P, Fleming C, Cohn RJ. Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors' and Their Families' Perspectives. Journal of Adolescent and Young Adult Oncology 2011; 1(2): 87 - 94.
Ferguson AE, Cohn RJ, Ashton LJ. Use of Formalin-fixed Paraffin-embedded Tumor Tissue as a DNA Source in Molecular Epidemiological Studies of Pediatric CNS Tumors. Diagnostic Molecular Pathology 2012; 21(2): 105 - 113.
Wakefield CE, McLoone JK, Fleming CAK, Peate M, Thomas E, Sansom-Daly UM, Butow P, Cohn RJ. Adolescent cancer and health-related decision-making: A multiperspective family analysis. Journal of Adolescent and Young Adult Oncology 2011.
Vedi A, Cohn RJ. Oral versus intravenous antibiotics in treatment of paediatric febrile neutropenia. Journal of Paediatrics and Child Health 2011.
Cohen J, Wakefield CE, Cohn RJ, Bartle J. Nutritional interventions in childhood cancer survivors. Cochrane Database of Systematic Reviews 2012.
Daniel G, Wakefield CE, Ryan B, Fleming CAK, Levett N, Cohn RJ. Accommodation in pediatric oncology: Parental experiences, preferences and unmet needs. Rural and Remote Health 2012.
Gnaneswaran S, Deans R, Cohn RJ. Reproductive Late Effects in Female Survivors of Childhood Cancer, Obstetrics and Gynecology International. Parental smoking may confer negligible environmental, but significant lifestyle costs to childhood cancer survivors. Obstetrics and Gynecology International, 2012:564794.
Smee RI, Williams JR, De-Loyde KJ, Meagher NS, Cohn RJ. Medulloblastoma: progress over time. Journal Medical Imaging Radiation Oncology 2012; 56(2): 227 - 234.
Giles Robinson,Matthew Parker,Tanya A. Kranenburg, Charles Lu, Xiang Chen,Li Ding, Timothy N. Phoenix,Erin Hedlund,Lei Wei,Xiaoyan Zhu,Nader Chalhoub, Suzanne J. Baker,Robert Huether,Richard Kriwacki,Natasha Curley, Radhika Thiruvenkatam, Jianmin Wang,Gang Wu, Michael Rusch, Xin Hong, Jared Becksfort, Pankaj Gupta,Jing Ma, John Easton, Bhavin Vadodaria , Arzu Onar-Thomas,Tong Lin, Shaoyi Li,Stanley Pounds, Steven Paugh, David Zhao, Daisuke Kawauchi, Martine F. Roussel, David Finkelstein, David W. Ellison, Ching C. Lau, Eric Bouffet, Tim Hassall, Sridharan Gururangan, Richard Cohn, Robert S. Fulton, Lucinda L. Fulton, David J. Dooling, Kerri Ochoa, Amar Gajjar, Elaine R. Mardis, Richard K. Wilson,James R. Downing, Jinghui Zhang & Richard J. Gilbertson. "Novel mutations target distinct subgroups of medulloblastoma" Nature, 488:43-48, 2 August 2012.
McLoone, J.K., Wakefield, C.E., Yoong, S.L., Cohn, R.J. (In press). Parental Sleep Experiences on the Pediatric Oncology Ward. Accepted by Supportive Care in Cancer, 20th July 2012.
Sansom-Daly, U.M., Wilson, C.L., Ashton, L.J., Wakefield, C.E., Johnston, K., Cohn, R.J. Further evidence for the co-occurrence of adverse health behaviors among childhood cancer survivors: An Australian report. Accepted by Pediatric Blood and Cancer, 6th August, 2012.
Sansom-Daly, U.M., Wakefield, C.E., Bryant, R.A., Butow, P., Sawyer, S., Patterson, P., Anazodo, A., Thompson, K., Cohn, R.J. Online group-based cognitive-behavioural therapy for adolescents and young adults after cancer treatment: A multicenter randomized controlled trial of Recapture Life-AYA. Accepted by BMC Cancer, 8th July 2012.
McLoone, J.K., Wakefield, C.E., Cohn, R.J. (2012). Childhood cancer survivors’ school (re)entry experiences: Australian parents’ perceptions. Accepted by European Journal of Cancer Care, June 2012.
McLoone, J.K., Wakefield, C.E., Yoong, S.L., Cohn, R.J. Parental sleep experiences on the paediatric oncology ward. Accepted by Supportive Care in Cancer, May 2012.
GRANTS
CIA. Sydney Children’s Hospital Foundation. Cure is not enough: Physical and psychosocial late effects of treatment in survivors of childhood cancer. 2002. $29,666.
CIB. UNSW Faculty Grant Research Programme. Long-term adjustment in survivors of childhood cancer and their siblings. 2003. $4,665.
CIA. NSW Department of Health – Telehealth - research into value of videoconferencing in outreach in Paediatrics. 2004. $80,000.
CID. SCH Foundation. Once daily gentamicin in infants and children: A prospective cohort study evaluating safety and the role of therapeutic drug monitoring in minimizing toxicity. 2004. $15,000.
CIB. Kidcom. Linking hospital and community for families of sick children, Baxter Charitable Foundation. 2004. $5,000.
CIA. Department of Health, NSW. Telehealth and distance education in conjunction with GESCHN. 2005-2006. $100,000.
CIA. Paediatric Rehabilitation Grant from the Cure for Life Foundation for rehabilitation project in patients with brain tumours. 2006. $100,000.
CIA. NSWOG Priority Projects, Cancer Institute NSW. Improving psychosocial care for adolescent & young adults survivors of childhood cancer. 2007. $40,000.
CIA. Cancer Institute NSW MDT Development Program. Cancer Institute NSW for project for the development of multidisciplinary teams in Cancer Care in NSW. 2007. $180,000.
CIA. Paediatric Rehabilitation Grant from the Cure for Life Foundation for rehabilitation project in patients with brain tumours. 2007. $100,000.
CIB. Ben Donahoe memorial fund. Research into psychological impact of the diagnosis of a brain tumour on the patient and family. 2007. $10,000.
CIA. Paediatric Rehabilitation Grant from the Cure for Life Foundation for rehabilitation project in patients with brain tumours. 2008. $110,000.
CIB. NSW Cancer Council Grant. Long-term health outcomes in survivors of childhood cancer and their families. 2008-2010. $300,000.
CIC. Research Grants-in-Aid. Leukaemia Foundation of Australia. Familial psychological adjustment and needs on childhood cancer treatment completion. 2008-2009. $70,460.
CIA. Cancer Institute NSW/Research Innovation Grants. Metabolic complications in childhood leukaemia survivors. 2009. $46,600.
CIA. Kids With Cancer Foundation Behavioural Sciences Research Program. 2009. $120,372.
CIB. Leukaemia Foundation of Australia. PhD Scholarship 2010 for student Ursula Sansom-Daly. Institution: University of New South Wales. Where to after treatment? A new way to support young people with cancer and their parents. 2009-2011. $120,000.
CIB. Anthony Rothe Memorial Trust. PhD scholarship for Catharine Fleming. University of New South Wales. ENeRgy-Kids’ and ‘ENeRgy-Survivor’: Exercise and Nutrition inteRvention for survivors of childhood cancer. 2011-2013. $112 500.
CIB. UNSW Early career researcher grant (Medicine). Meeting the needs of parents after their child’s cancer treatment: A phase II randomised trial. 2011. $19,000.
CIB. ‘ReCaPTure LiFe’: A phase II randomised trial of a psychological intervention to support adolescent and young adult cancer survivors. Co-funded by Cancer Australia and Beyond Blue. 2012-2013. $270,486.50.
CONFERENCES (ORAL PRESENTATIONS)
Cohn RJ, Bland E, Greig S, Hall J, Donohoe M, Galli E, Beston. (2006). Paediatric Brain Tumour Rehabilitation Programme: The benefits of implementing a new service to address the physical, psychological and social needs of children with a brain tumour. ANZCHOG, Queenstown, New Zealand.
Daly G, Cohn RJ. (2006). Promoting Chemotherapy Safety: A multidisciplinary Approach to Implement an Electronic Medication Management System. ANZCHOG, Queenstown, New Zealand.
Johnston K, Maguire A, Cohn RJ. A case control study: fracture incidence in long-term survivors of childhood malignancy. ANZCHOG, Queenstown, New Zealand.
Gabriel MA, Trahair T, Russell SJ, Maurice LC, Cohn RJ, Marshall GM, Vowels MR, Oswald C, O’Brien TA. (2006). Significant reductions in transplant related mortality and overall survival following haematopoietic cell transplant for acute paediatric leukaemias. ANZCHOG, Queenstown, New Zealand.
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2006). Glutathione S-Transferase polymorphisms in survivors of paediatric cancer. 15th Annual Meeting of the Australasian Epidemiological Association, Melbourne, Australia.
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2006). The role of the glutathione S-Transferase in susceptibility to childhood AML in an Australian Population. 15th Annual Meeting of the Australasian Epidemiological Association, Melbourne, Australia.
Ferguson AE, Cohn RJ, Tobias V, Bland E, Ashton LJ. (2006). Archival paraffin-embedded tissue as a DNA source in molecular epidemiology studies: advantages and disadvantages. AEA annual meeting.
Ferguson AE, Cohn RJ, Bland E, Ashton LJ. (2006). Glutathione-S-transferase (GST) polymorphisms in childhood central nervous system tumours. AEA annual meeting.
Suneson CJ, Goodenough B, Johnston K, Cohn R. (2007). The Psychosocial Legacy of Survival. Long-term adjustment of childhood cancer survivors and their families, and the applicability of a cognitive model of trauma to assessment and treatment. SIOP Mumbai.
Russell S, Oswald C, Smee R, Cohn RJ, Marshall G, O'Brien T, Vowels M. (2007). Single institution experience in treating children with relapse of Acute Lymphoblastic Leukaemia in the central nervous system with stem cell transplantation and total body irradiation with or without a cranial boost. American Society of Hematology (ASH). Atlanta
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2007). Tracing and recruiting survivors of childhood cancer: the Australian Experience. American Association for Cancer Research Annual Meeting, Los Angeles, USA.
Wilson CL, Johnston K, Cohn RJ, Ashton LJ. (2007). Investigating late effects of childhood cancer treatment: Challenges of establishing a survivor cohort. Australian and New Zealand Children’s Haematology & Oncology Group (ANZCHOG). Annual Scientific Meeting, Sydney, Australia.
Ferguson AE, Cohn RJ, Bland E, Prietto SP, Ashton LJ. (2007). Gene Polymorphisms in the Folate Pathway of Children with Embryonal Central Nervous System Tumours. 16th Annual Meeting of the Australasian Epidemiological Association, Hobart, Australia.
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2007). Late mortality and second malignancies among survivors of childhood cancer. Joint Scientific Meeting of the AEA and the IEA Western Pacific Region, Hobart, Australia.
Goodenough B, Willis L, Foreman T, Salli L, Cavenett, Cohn RJ. (2007). Coping with childhood cancer: is it better to “think well” or “act mindfully”. International conference on Acceptance and commitment therapy (ACT), Relational frame therapy (RFT), and Contextual behavioural science. Wollongong, Australia.
Suneson CJ, Goodenough B, Johnston K, Cohn RJ. (2008). The Applicability of a Cognitive Model of Trauma to the Assessment and Treatment of Childhood Cancer Survivors (CCS), Their Parents and Siblings. 10th International Conference Long-Term Complications of Treatment of Children and Adolescents for Cancer, Niagara on the Lake, Ontario Canada.
Johnston K, Goodenough B, Suneson CJ, Cohn RJ. (2008). Knowledge deficits: prevent effective navigation of health systems by childhood cancer survivors.3rd International Nursing Conference on Child and Adolescent Survivorship. Niagara on the Lake, Ontario, Canada.
Young MK, Senner A, Cohn RJ. (2008). Evaluation of a Paediatric Oncology Multidisciplinary Team COSA – IACR Joint Scientific Meeting, Sydney, Australia.
Goodenough B, Salli L, Cavenett T, Watts K, Willis L, Foreman T, Cohn RJ. (2008). A single-session intervention based on Acceptance and Commitment Therapy (ACT) for managing unwanted thoughts and feelings about cancer: A pilot programme for parents of children diagnosed with cancer. 35th Scientific Meeting of the Clinical Oncology Society of Australia (COSA-IACR-ANZGOSA). Published Abstract: Asia-Pacific Journal of Clinical Oncology. Sydney, Australia.
Wakefield CE, McLoone JK, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. (2008). Psychosocial issues following recent childhood cancer treatment completion: A systematic literature review and guidelines for end-of-treatment support. COSA – IACR Joint Scientific Meeting, Sydney, Australia.
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2008). Second malignancies and late mortality among survivors of childhood cancer. COSA – IACR Joint Scientific Meeting, Sydney, Australia.
Cohn RJ, Wilson CL, Johnston K, Ashton LJ. (2009). Mortality in 5-year survivors of Childhood Cancer. ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Lenthen K, Wakefield CE, McLoone JK, Cohn RJ. (2009). Completing Childhood Cancer Treatment and the Psychological Impact: A Milestone or Millstone with Families. ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Bandopadhayay P, Ashley A, Downie P, Kirby M, Cohn RJ, Sullivan M, Houlihan J, Hassall T. (2009). ANZCCSG BabyBrain 99; Intensified Systemic Chemotherapy, Second Look Surgery and Involved Field Radiation in Young Children with Central Nervous System Malignancy ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Wright F, Daly G, Bryne L, Fischmann A, Ziegler D, Senner A, Cohn RJ. (2009). An effective intervention targeting patient safety at the beside. ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Cohen JE, Wakefield CE, Gawthorne R, Cohn RJ. (2009). Dietary intakes and parent feeding practices of children who have completed treatment for cancer. 41st Annual meeting of the International Society of Paediatric Oncology, Sao Paulo, Brazil.
McLoone JK, Wakefield CE, Lenthen K, Butow P, Cohn RJ. (2009). Finishing cancer treatment: The positives and negatives for adolescents and their families. 36th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting. Asia-Pacific Journal of Clinical Oncology, Gold Coast, Australia.
Wakefield CE, McLoone JK, Lenthen K, Butow P, Cohn RJ. (2009). Finishing cancer treatment: The positives and negatives for adolescents and their families. Coast Association TOW Research Awards.
Wakefield CE, McLoone JK, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. (2009). The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature and guidelines for end of treatment support. UNSW Research Showcase: Well-being.
McLoone JK, Wakefield CE, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. (2009). Completing childhood cancer treatment: A review of the psychosocial literature and guidelines for end-of-treatment support. 11th World Congress of Psycho-Oncology, London, England.
Pasquale Barbaro, Karen Johnston, Richard Cohn, Luce Dalla Pozza, Glenn Marshall, David Ziegler. (2010). Reduced incidence of second malignancies in childhood Hodgkin’s Disease treated with chemotherapy only. Oral Presentation, ANZCHOG 2010
Wakefield CE, McLoone JK, Fleming C, Butow P, Cohn RJ. (2010). ‘Suddenly he’s dropped from an ‘A’ student to a ‘C’’: A qualitative investigation of the educational experiences and concerns of young cancer survivors and their families. Asia-Pacific Journal of Clinical Oncology, 2010; 6(3): 252. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Wakefield CE, Butow P, Lenthen K, Cohn RJ. (2010). Translating research results into practice, and fast: An example from paediatric oncology survivorship research. Asia-Pacific Journal of Clinical Oncology, 2010; 6(3): 229. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Cohen J, Wakefield CE, Fleming C, Cohn RJ. (2010). A qualitative study of parent attitudes to nutrition after completion of their child’s cancer treatment. Asia-Pacific Journal of Clinical Oncology, 6(3): 205. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Sansom-Daly UM, Peate M, Wakefield CE, Bryant RA, Cohn RJ. (2010). How to cope with being ‘cured’: A systematic review of current psychological interventions for adolescents and young adults living with cancer, compared with the state of the art in other chronic illnesses. Asia-Pacific Journal of Clinical Oncology, 2010; 6(3): 201. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Thomas D, Mok K, Palmer S, Patterson P, Thompson K, Cohn RJ. (2010). A new way to support AYAs and their families beyond cancer treatment: Protocol of a phase II cluster-randomised trial of “ReCapTure LiFe: Skills for Survivorship”. Asia-Pacific Journal of Clinical Oncology, 2010; 6(3): 247. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Cohen J, Wakefield CE, Fleming C, Cohn RJ. (2010). Parent attitudes to nutrition and physical activity after completion of their child’s cancer treatment. (2010). Australian New Zealand Children’s Haematology and Oncology Group (ANZCHOG) Annual Scientific Meeting, Sydney, Australia.
Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Thomas D, Mok K, Palmer S, Patterson P, Thompson K, Cohn RJ. (2010). “ReCapTure LiFe” - A Novel Psychoeducational Intervention to Support Young Cancer Survivors and their Families Beyond Cancer Treatment. Protocol of A Phase II Cluster-Randomised Controlled Trial. Australian New Zealand Children’s Haematology and Oncology Group (ANZCHOG) Annual Scientific Meeting, Sydney, Australia.
Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Thomas D, Cohn RJ. (2010). Evaluating the Feasibility and Efficacy of ReCapTure LiFe: A Novel Psychological Intervention for AYAs and their families. Protocol of A Phase II Cluster-Randomised Controlled Trial. Sydney Cancer Conference, Sydney, Australia.
Wakefield CE, McLoone JK, Mok K, Peate M, Thomas EJ, Sansom-Daly UM, Butow P, Cohn RJ. (2010). Health-related decision-making in the context of adolescents with cancer: A pilot study. 7th Annual Scientific Conference of the Australasian Society for Behavioural Health and Medicine (ASBHM), Gold Coast, Australia.
McLoone JK, Wakefield CE, Lenthen K, Butow P, Cohn RJ. Getting back on the bus: a qualitative evaluation of adolescents’ return to school after completing cancer treatment. 7th Annual Scientific Conference of the Australasian Society for Behavioural Health and Medicine (ASBHM), Gold Coast, Australia.
Cohen J, Wakefield CE, Fleming C, Cohn RJ. (2010). Parental control and dietary intake of childhood cancer survivors. Coast Association TOW Research Awards. Sydney
Sansom-Daly UM, Bryant RA, Wakefield CE, Cohn RJ. (2010). When cure is not enough: A discussion of the mechanisms underpinning distress and adaptation in young cancer survivors. Abstract submitted for oral presentation at The Third Annual Sydney Postgraduate Psychology Conference.
Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Thomas D, Mok K, Palmer S, Patterson P, Thompson K, Cohn RJ. (2010). “ReCapTure LiFe” - A Novel Psychoeducational Intervention to Support Young Cancer Survivors and their Families Beyond Cancer Treatment. ANZCHOG Annual Scientific Meeting, Long-Term Follow-Up Professional Day.
Wakefield CE, McLoone JK, Fleming C, Butow P, Daniel G, Cohn RJ. (2011). Perceptions of support received and needed by families of childhood cancer survivors recently off treatment. World Cancer Congress, Dalian, China.
Wakefield CE, McLoone JK, Yoong SL, Cohn R. (2011). On-ward sleep experiences of parents of children with cancer. Asia-Pacific Journal of Clinical Oncology, 7, 158-159. Clinical Oncological Society of Australia (COSA), 38th Annual Scientific Meeting. (Awarded $1000 travel grant from COSA), Perth, Australia.
McLoone JK, Wakefield CE, Fleming CAK, Cohn RJ. (2011). School (Re) Entry After Paediatric Cancer: A Qualitative Examination. 13th Annual World Congress of Psycho-Oncology, Antalya, Turkey.
Wakefield CE, Drew D, Ellis S, Cohn RJ. (2011). Meeting the information needs of grandparents of children with cancer. 43rd Annual meeting of the International Society of Paediatric Oncology, Auckland, New Zealand.
Wakefield CE, McLoone JK, Yoong SL, Cohn RJ. (2011). How much sleep are parents getting on the pediatric oncology ward? 43rd Annual meeting of the International Society of Paediatric Oncology, Auckland, New Zealand.
Cohen J, Wakefield CE, Fleming CAK, Cohn RJ. (2011). Parent reported food preferences of childhood cancer survivors. 43rd Annual meeting of the International Society of Paediatric Oncology, Auckland, New Zealand.
Cohen J, Wakefield CE, Fleming CAK, Cohn RJ. (2011). Parental attitudes toward nutrition during and after childhood cancer treatment. 43rd Annual meeting of the International Society of Paediatric Oncology, Auckland, New Zealand.
Wakefield CE, McLoone JK, Fleming CAK, Butow P, Daniel G, Cohn RJ. (2011). Perceptions of support received and needed by families of childhood cancer survivors recently off treatment. 8th Annual Conference of the American Psychosocial Oncology Society, Anaheim, USA.
Drew D, Wakefield CE, Punch D, Ellis S, Cohn RJ. (2012). From the hospital bed to the classroom – Connecting children with cancer using online videoconferencing. 9th Annual Conference of the American Psychosocial Oncology Society (APOS), Miami, USA.
Drew D, Wakefield CE, Ellis S, Cohn RJ. (2012). ‘The forgotten caregivers’: Information and support needs of grandparents of children with cancer.. 9th Annual Conference of the American Psychosocial Oncology Society (APOS), Miami, USA.
Cohen J, Wakefield CE, Fleming CAK, Cohn RJ. (2012). Enteral nutrition use in a clinical setting: misconceptions and attitudes. 16th International Congress of Dietetics, Sydney, Australia.
TEACHING CONTRIBUTIONS
Undergraduate medical students:
Paediatric medical and ILP students attend ward rounds, outpatients, multidisciplinary meetings and other academic meetings.
Phase 2 students – supervision of clinical skills tutorial – chronic illness and adolescence
Phase 3 students attend ward rounds (clinical skills and patient management) and outpatients when attached to Oncology. 2008-2009.
Post graduate paediatric registrar and Fellow trainees:
Daily teaching ward rounds/ Supervision in ambulatory clinic
Preparation/tutorials for the written and clinical examinations of the RACP
Supervision of training and projects and mentoring for the FRACP
Mentoring of registrars to publish research – 7 published papers
Fellows whom I mentored are now Consultant Oncologists in Sydney, Auckland, Newcastle, Jordan. Contribution to training of next generation of child cancer specialists.
Sydney Children’s Hospital. Late effects of childhood cancer therapy. Diploma of Paediatrics. Annual. Post graduate Students
Sydney Children’s Hospital. Late effects of childhood cancer therapy. FRACP. Annual. FRACP candidates
Sydney Children’s Hospital. Leukaemia in children. . FRACP. Annual. FRACP candidates
Sydney Children’s Hospital. Update on paediatric haematology / oncology. SCH Paediatrics Course. General Paediatricians.
Grand Rounds –POW Long-term Follow-up of Adult Survivors of Childhood Cancer
SUPERVISORY RESPONSIBILITIES (RESEARCH-RELATED)
Supervisor. NHMRC Post Doctoral Training Fellow. Dr Claire Wakefield. Clinical Research Fellowship 2009 -2012.
PhD students
ILP students
Practice improvement or quality projects leading to other outputs
Parents/Community:
Kids Cancer update:
For the past 5 years I have organized an education day for parents and patients which has been very well received. The day has included video conference lectures by overseas
speakers whom I have invited and organized the facilities. For the past 3 years I have arranged for rural families to participate by using Teleheath facilities at their local hospital.
Family Handbook:
Compiling and editing parent handbook which is given to all newly diagnosed families in the KCC provides information about diseases, treatment and facilities in lay language.
Medication Safety: Pharmacists utilise IIMS to improve medication safety for children with cancer. Baxter health Awards 2008.
Shared-care management of “Fever and Neutropenia” in children with cancer (2011). Project completed with Clinical Excellence Commission as part of the Clinical Leadership Program
Committees, executive positions and editorial boards
University/Hospital/College and Community Committees:
Sydney Children's Hospital, Randwick
University of New South Wales
Associate professor of Paediatrics
Co-Director, NSW Cancer Survivor Centre, UNSW
Royal Australian College of Physicians
E-Health Committee
Australian and New Zealand Children’s Haematology Oncology Study group
Co-chair, Cancer Survivorship Committee
Convener, Late effects workshop. # June 2009, Adelaide
Convener, Cancer Survivorship Workshop, September, 2010
NSW Cancer Institute:
Member child and adolescent oncology group (2003 –present)
Chairman, special subcommittee on Cancer Survivorship project 2007-2008
Member, neuro-oncology group (2003 -2008)
International Society of Paediatric Oncology (SIOP). Member since 1987.Committee member, Committee for Supportive Care of childhood cancer patients.
Children’s Oncology Group, USA
Investigator and member, (2000 to date).
American Society of Pediatric Hematology and Oncology (ASPHO). Member since 2000.
Charity and Advisory Boards
Represent the interests of children and their families who are treated for cancer and blood diseases, and involved in fund raising.
· Medical Advisor, Sydney children’s Hospital Foundation Joshua Holland Leukaemia Fund, (2000 to date).
· Scientific Advisory Committee, Cure for Life Foundation, (2006-2008).
· Board member, Sydney Cord Blood Bank Foundation (2012 to date)
REVIEWER FOR THE FOLLOWING JOURNALS:
Pediatric Hematology Oncology
Journal of Paediatrics
Medical Journal of Australia
Pediatric Blood and Cancer
Asia Pacific Journal of Clinical Oncology
PRIZES AND AWARDS
Arthur Robertson Travelling Fellowship of the University of the Witwatersrand – attached to the Departments of Haematology/ Oncology, Children’s Hospital of Los Angeles (August - September, 1981), and Haematology, John Radcliffe Infirmary, Oxford, England, (October –December, 1981).
FOYSA (Four Outstanding Young South Africans) Award Awarded by Jaycees “to honour individuals who have surpassed the average and through application, dedication and foresight have achieved where others fail or accept mediocrity and have contributed meaningfully to the collection of peoples comprising South Africa”. 1987.
Paul Harris Fellow. Awarded by The Rotary Foundation of Rotary International “in appreciation of tangible and significant assistance given for the furtherance of better understanding and friendly relations between peoples of the world”. 1987.
Medical Media Awards. Excellence in the Field of Medicine Award. 2008.
Thambugala GM, Pereira J, Sugo E, Henry G, Cohn RJ. A case of solid and cystic papillary epithelial neoplasm (SCPEN) of the pancreas in an 11-year old girl: Imaging features with Pathological correlation. Australasia Radiology 2006; 50(4): 373 – 376.
Neville KA, Cohn RJ, Steinbeck K, Johnston K, Walker JL. Hyperinsulinemia, IGT and DM in survivors of childhood cancer: prevalence and risk factors. Journal Clinical Endocrinology Metabolism 2006; 91(11): 4401 – 4407.
Nair K, Goodenough B, Cohn RJ. Telephone support groups for isolated bereaved parents: a review of the literature and an example from Australian Paediatric Oncology. Illness, Crisis and Loss 2006; 14(4): 321 - 338.
Provenzano SC, Cohn RJ, Jones OD, Grant PW. Synovial sarcoma of the heart. Heart Lung Circ 2006;15(4): 278 – 279.
Radhakrishnan K, Rozenberg G, Cohn RJ. Unusual haematologic manifestations of mycoplasma pneumoniae infection. Journal of Paediatric Child Health 2007; 43(1-2): 80 - 82.
Trahair T, Andrews L, Cohn RJ. Recognition of Li Fraumeni syndrome at diagnosis of a locally advanced extremity rhabdomyosarcoma: implications for management. Pediatric Blood Cancer 2007; 48(3): 345 - 348.
Radhakrishnan K, Rozenberg G, Brighton T, Cohn RJ. Isolated Thrombocytopenia in Children - Thinking beyond ITP and Leukaemia. Journal of Paediatric Child Health 2007; 43(12): 80 - 82.
Petterson TE, Bosco AA, Cohn RJ. Aggressive Natural Killer Cell Leukaemia in a Paediatric patient presenting with Haemophagocytic Lymphohistiocytosis. Pediatric Blood and Cancer 2008; 50(3): 654 - 656.
Trahair TN, Vowels MR, Johnston K, Cohn RJ, Russell SJ, Neville KA, Carroll S, Marshall GM. Long-term outcomes in children with high-risk neuroblastoma treated with autologous stem cell transplantation. Bone Marrow Transplantation 2007; 40(8): 741 - 746.
Johnston K, Vowels M, Carroll S, Cohn RJ. Failure to Lactate: A possible Late Effect of Cranial Radiation. Pediatric Blood and Cancer 2008; 50(3): 721 - 722.
Beckett SM, Laughton SJ, Pozza LD, McCowage GB, Marshall G, Cohn RJ, Milne E, Ashton LA. Buccal swabs and treated cards: Methodological considerations for molecular epidemiologic studies examining pediatric populations. American Journal of Epidemiology 2008; 167: 1260 - 1267.
Goodenough B, Johnston K, Suneson Casey J, Foreman T, Cohn RJ. The priority of risk-based health care for Australian survivors of childhood cancer: Patient self-reports of concerns and the “Health Passport” initiative. Austral-Asian Journal of Cancer 2008; 7(1): 29 – 39.
Wilson CL, Cohn RJ, Johnson K, Ashton LJ. Tracing survivors of childhood cancer in Australia. Pediatric Blood and Cancer 2009; 52(4): 510 - 515.
Wilson CL, Cohn RJ, Ashton LJ. Survivors of Childhood Cancer: Issues and Challenges. When cancer crosses disciplines. Imperial College Press (London, UK) 2009; 1047 - 1076.
Wakefield CE, McLoone JK, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature. Journal of Pediatric Psychology 2010; 35(3): 262 - 274.
Satharasinghe K, Trahair TN, Barbaric D, O'Brien TA, Russell SJ, Cohn RJ, Marshall GM, Ziegler DS. False Positive MIBG Scans with Normal CT Imaging In High-Risk Neuroblastoma Patients. Journal of Clinical Oncology 2009; 27(34).
Schindler T, Yu C, Rossleigh M, Pereira J, Cohn RJ. False positive MIBG uptake in pneumonia in a patient with stage IV neuroblastoma. Clinical Nuclear Medical 2010; 35(9): 743 - 745.
Wilson CL, Cohn RJ, Johnson KA, Ashton LJ. Second cancers and late mortality among a cohort of childhood cancer survivors. Medical Journal Australia 2010; 193(5): 258 - 261.
Palmer SL, Hassall T, Evankovich K, Mabbott DJ, Bonner M, Deluca C, Cohn RJ, Fisher MJ, Morris EB, Broniscer A, Gajjar A. Neurocognitive outcome 12 months following cerebellar mutism syndrome in pediatric patients with medulloblastoma. Neurology Oncolology 2010; 12(12): 1311 - 1317.
Wakefield CE, McLoone JK, Butow P, Lenthen K, Cohn RJ. Parental adjustment to the completion of their child's cancer treatments. Pediatric blood and Cancer 2011; 4: 524 – 531.
Bandopadhayay P, Ashley D, Downie P, Kirby M, Cohn RJ, Sullivan M, Houlihan J, Hassall T. Intensified Systemic Chemotherapy, Second Look Surgery and Involved Field Radiation in Young Children with Central Nervous System Malignancy. Pediatric Blood and Cancer 2011; 56(7): 105 - 161.
McCowage GB, Alvaro F, Cohn RJ, Ziegler DS, Oswald C, Mrongovius R, White L. Treatment of Children With Poor Risk Solid Tumors by Further Escalation of the VETOPEC Regimen Including Very High Dose Cyclophosphamide and Peripheral Stem Cell Support: An Australian and New Zealand Children’s Haematology and Oncology Group Study. Pediatric Blood & Cancer 2011; 57(6): 958 – 964.
Best EJ, Gazarian M, Cohn RJ, Wilkinson M, Palasanthiran P. Once daily gentamicin in infants and children: A prospective cohort study evaluating safety and the role of therapeutic drug monitoring in minimizing toxicity. Pediatric Infectious Disease Journal 2011; 30(10): 827 - 832.
Barbaro PM, Johnston K, Dalla-Pozza L, Cohn RJ, Wang YA, Marshall GM, Ziegler DS. Reduced incidence of second solid tumors in survivors of childhood Hodgkin's lymphoma treated without radiation therapy. Annals of Oncology 2011; 22(12): 2569 - 2574.
Cohen J, Wakefield CE, Fleming CAK, Gawthorne R, Tapsell L, Cohn RJ. Dietary Intake after Treatment in Child Cancer Survivors. Pediatric Blood & Cancer 2012; 58(5): 752 – 757.
Wakefield CE, Butow P, Fleming CAK, Daniel G, Cohn RJ. (2012). Family information needs at childhood cancer treatment completion. Pediatric Blood and Cancer 2012; 58: 621 - 626.
Sansom-Daly UM, Peate M, Wakefield CE, Bryant RA, Cohn RJ. A Systematic Review of Psychological Interventions for Adolescents and Young Adults Living With Chronic Illness. Health Psychology 2012; 31(3): 380 - 393.
McLoone JK, Wakefield CE, Butow P, Fleming C, Cohn RJ. Returning to School After Adolescent Cancer: A Qualitative Examination of Australian Survivors' and Their Families' Perspectives. Journal of Adolescent and Young Adult Oncology 2011; 1(2): 87 - 94.
Ferguson AE, Cohn RJ, Ashton LJ. Use of Formalin-fixed Paraffin-embedded Tumor Tissue as a DNA Source in Molecular Epidemiological Studies of Pediatric CNS Tumors. Diagnostic Molecular Pathology 2012; 21(2): 105 - 113.
Wakefield CE, McLoone JK, Fleming CAK, Peate M, Thomas E, Sansom-Daly UM, Butow P, Cohn RJ. Adolescent cancer and health-related decision-making: A multiperspective family analysis. Journal of Adolescent and Young Adult Oncology 2011.
Vedi A, Cohn RJ. Oral versus intravenous antibiotics in treatment of paediatric febrile neutropenia. Journal of Paediatrics and Child Health 2011.
Cohen J, Wakefield CE, Cohn RJ, Bartle J. Nutritional interventions in childhood cancer survivors. Cochrane Database of Systematic Reviews 2012.
Daniel G, Wakefield CE, Ryan B, Fleming CAK, Levett N, Cohn RJ. Accommodation in pediatric oncology: Parental experiences, preferences and unmet needs. Rural and Remote Health 2012.
Gnaneswaran S, Deans R, Cohn RJ. Reproductive Late Effects in Female Survivors of Childhood Cancer, Obstetrics and Gynecology International. Parental smoking may confer negligible environmental, but significant lifestyle costs to childhood cancer survivors. Obstetrics and Gynecology International, 2012:564794.
Smee RI, Williams JR, De-Loyde KJ, Meagher NS, Cohn RJ. Medulloblastoma: progress over time. Journal Medical Imaging Radiation Oncology 2012; 56(2): 227 - 234.
Giles Robinson,Matthew Parker,Tanya A. Kranenburg, Charles Lu, Xiang Chen,Li Ding, Timothy N. Phoenix,Erin Hedlund,Lei Wei,Xiaoyan Zhu,Nader Chalhoub, Suzanne J. Baker,Robert Huether,Richard Kriwacki,Natasha Curley, Radhika Thiruvenkatam, Jianmin Wang,Gang Wu, Michael Rusch, Xin Hong, Jared Becksfort, Pankaj Gupta,Jing Ma, John Easton, Bhavin Vadodaria , Arzu Onar-Thomas,Tong Lin, Shaoyi Li,Stanley Pounds, Steven Paugh, David Zhao, Daisuke Kawauchi, Martine F. Roussel, David Finkelstein, David W. Ellison, Ching C. Lau, Eric Bouffet, Tim Hassall, Sridharan Gururangan, Richard Cohn, Robert S. Fulton, Lucinda L. Fulton, David J. Dooling, Kerri Ochoa, Amar Gajjar, Elaine R. Mardis, Richard K. Wilson,James R. Downing, Jinghui Zhang & Richard J. Gilbertson. "Novel mutations target distinct subgroups of medulloblastoma" Nature, 488:43-48, 2 August 2012.
McLoone, J.K., Wakefield, C.E., Yoong, S.L., Cohn, R.J. (In press). Parental Sleep Experiences on the Pediatric Oncology Ward. Accepted by Supportive Care in Cancer, 20th July 2012.
Sansom-Daly, U.M., Wilson, C.L., Ashton, L.J., Wakefield, C.E., Johnston, K., Cohn, R.J. Further evidence for the co-occurrence of adverse health behaviors among childhood cancer survivors: An Australian report. Accepted by Pediatric Blood and Cancer, 6th August, 2012.
Sansom-Daly, U.M., Wakefield, C.E., Bryant, R.A., Butow, P., Sawyer, S., Patterson, P., Anazodo, A., Thompson, K., Cohn, R.J. Online group-based cognitive-behavioural therapy for adolescents and young adults after cancer treatment: A multicenter randomized controlled trial of Recapture Life-AYA. Accepted by BMC Cancer, 8th July 2012.
McLoone, J.K., Wakefield, C.E., Cohn, R.J. (2012). Childhood cancer survivors’ school (re)entry experiences: Australian parents’ perceptions. Accepted by European Journal of Cancer Care, June 2012.
McLoone, J.K., Wakefield, C.E., Yoong, S.L., Cohn, R.J. Parental sleep experiences on the paediatric oncology ward. Accepted by Supportive Care in Cancer, May 2012.
GRANTS
CIA. Sydney Children’s Hospital Foundation. Cure is not enough: Physical and psychosocial late effects of treatment in survivors of childhood cancer. 2002. $29,666.
CIB. UNSW Faculty Grant Research Programme. Long-term adjustment in survivors of childhood cancer and their siblings. 2003. $4,665.
CIA. NSW Department of Health – Telehealth - research into value of videoconferencing in outreach in Paediatrics. 2004. $80,000.
CID. SCH Foundation. Once daily gentamicin in infants and children: A prospective cohort study evaluating safety and the role of therapeutic drug monitoring in minimizing toxicity. 2004. $15,000.
CIB. Kidcom. Linking hospital and community for families of sick children, Baxter Charitable Foundation. 2004. $5,000.
CIA. Department of Health, NSW. Telehealth and distance education in conjunction with GESCHN. 2005-2006. $100,000.
CIA. Paediatric Rehabilitation Grant from the Cure for Life Foundation for rehabilitation project in patients with brain tumours. 2006. $100,000.
CIA. NSWOG Priority Projects, Cancer Institute NSW. Improving psychosocial care for adolescent & young adults survivors of childhood cancer. 2007. $40,000.
CIA. Cancer Institute NSW MDT Development Program. Cancer Institute NSW for project for the development of multidisciplinary teams in Cancer Care in NSW. 2007. $180,000.
CIA. Paediatric Rehabilitation Grant from the Cure for Life Foundation for rehabilitation project in patients with brain tumours. 2007. $100,000.
CIB. Ben Donahoe memorial fund. Research into psychological impact of the diagnosis of a brain tumour on the patient and family. 2007. $10,000.
CIA. Paediatric Rehabilitation Grant from the Cure for Life Foundation for rehabilitation project in patients with brain tumours. 2008. $110,000.
CIB. NSW Cancer Council Grant. Long-term health outcomes in survivors of childhood cancer and their families. 2008-2010. $300,000.
CIC. Research Grants-in-Aid. Leukaemia Foundation of Australia. Familial psychological adjustment and needs on childhood cancer treatment completion. 2008-2009. $70,460.
CIA. Cancer Institute NSW/Research Innovation Grants. Metabolic complications in childhood leukaemia survivors. 2009. $46,600.
CIA. Kids With Cancer Foundation Behavioural Sciences Research Program. 2009. $120,372.
CIB. Leukaemia Foundation of Australia. PhD Scholarship 2010 for student Ursula Sansom-Daly. Institution: University of New South Wales. Where to after treatment? A new way to support young people with cancer and their parents. 2009-2011. $120,000.
CIB. Anthony Rothe Memorial Trust. PhD scholarship for Catharine Fleming. University of New South Wales. ENeRgy-Kids’ and ‘ENeRgy-Survivor’: Exercise and Nutrition inteRvention for survivors of childhood cancer. 2011-2013. $112 500.
CIB. UNSW Early career researcher grant (Medicine). Meeting the needs of parents after their child’s cancer treatment: A phase II randomised trial. 2011. $19,000.
CIB. ‘ReCaPTure LiFe’: A phase II randomised trial of a psychological intervention to support adolescent and young adult cancer survivors. Co-funded by Cancer Australia and Beyond Blue. 2012-2013. $270,486.50.
CONFERENCES (ORAL PRESENTATIONS)
Cohn RJ, Bland E, Greig S, Hall J, Donohoe M, Galli E, Beston. (2006). Paediatric Brain Tumour Rehabilitation Programme: The benefits of implementing a new service to address the physical, psychological and social needs of children with a brain tumour. ANZCHOG, Queenstown, New Zealand.
Daly G, Cohn RJ. (2006). Promoting Chemotherapy Safety: A multidisciplinary Approach to Implement an Electronic Medication Management System. ANZCHOG, Queenstown, New Zealand.
Johnston K, Maguire A, Cohn RJ. A case control study: fracture incidence in long-term survivors of childhood malignancy. ANZCHOG, Queenstown, New Zealand.
Gabriel MA, Trahair T, Russell SJ, Maurice LC, Cohn RJ, Marshall GM, Vowels MR, Oswald C, O’Brien TA. (2006). Significant reductions in transplant related mortality and overall survival following haematopoietic cell transplant for acute paediatric leukaemias. ANZCHOG, Queenstown, New Zealand.
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2006). Glutathione S-Transferase polymorphisms in survivors of paediatric cancer. 15th Annual Meeting of the Australasian Epidemiological Association, Melbourne, Australia.
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2006). The role of the glutathione S-Transferase in susceptibility to childhood AML in an Australian Population. 15th Annual Meeting of the Australasian Epidemiological Association, Melbourne, Australia.
Ferguson AE, Cohn RJ, Tobias V, Bland E, Ashton LJ. (2006). Archival paraffin-embedded tissue as a DNA source in molecular epidemiology studies: advantages and disadvantages. AEA annual meeting.
Ferguson AE, Cohn RJ, Bland E, Ashton LJ. (2006). Glutathione-S-transferase (GST) polymorphisms in childhood central nervous system tumours. AEA annual meeting.
Suneson CJ, Goodenough B, Johnston K, Cohn R. (2007). The Psychosocial Legacy of Survival. Long-term adjustment of childhood cancer survivors and their families, and the applicability of a cognitive model of trauma to assessment and treatment. SIOP Mumbai.
Russell S, Oswald C, Smee R, Cohn RJ, Marshall G, O'Brien T, Vowels M. (2007). Single institution experience in treating children with relapse of Acute Lymphoblastic Leukaemia in the central nervous system with stem cell transplantation and total body irradiation with or without a cranial boost. American Society of Hematology (ASH). Atlanta
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2007). Tracing and recruiting survivors of childhood cancer: the Australian Experience. American Association for Cancer Research Annual Meeting, Los Angeles, USA.
Wilson CL, Johnston K, Cohn RJ, Ashton LJ. (2007). Investigating late effects of childhood cancer treatment: Challenges of establishing a survivor cohort. Australian and New Zealand Children’s Haematology & Oncology Group (ANZCHOG). Annual Scientific Meeting, Sydney, Australia.
Ferguson AE, Cohn RJ, Bland E, Prietto SP, Ashton LJ. (2007). Gene Polymorphisms in the Folate Pathway of Children with Embryonal Central Nervous System Tumours. 16th Annual Meeting of the Australasian Epidemiological Association, Hobart, Australia.
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2007). Late mortality and second malignancies among survivors of childhood cancer. Joint Scientific Meeting of the AEA and the IEA Western Pacific Region, Hobart, Australia.
Goodenough B, Willis L, Foreman T, Salli L, Cavenett, Cohn RJ. (2007). Coping with childhood cancer: is it better to “think well” or “act mindfully”. International conference on Acceptance and commitment therapy (ACT), Relational frame therapy (RFT), and Contextual behavioural science. Wollongong, Australia.
Suneson CJ, Goodenough B, Johnston K, Cohn RJ. (2008). The Applicability of a Cognitive Model of Trauma to the Assessment and Treatment of Childhood Cancer Survivors (CCS), Their Parents and Siblings. 10th International Conference Long-Term Complications of Treatment of Children and Adolescents for Cancer, Niagara on the Lake, Ontario Canada.
Johnston K, Goodenough B, Suneson CJ, Cohn RJ. (2008). Knowledge deficits: prevent effective navigation of health systems by childhood cancer survivors.3rd International Nursing Conference on Child and Adolescent Survivorship. Niagara on the Lake, Ontario, Canada.
Young MK, Senner A, Cohn RJ. (2008). Evaluation of a Paediatric Oncology Multidisciplinary Team COSA – IACR Joint Scientific Meeting, Sydney, Australia.
Goodenough B, Salli L, Cavenett T, Watts K, Willis L, Foreman T, Cohn RJ. (2008). A single-session intervention based on Acceptance and Commitment Therapy (ACT) for managing unwanted thoughts and feelings about cancer: A pilot programme for parents of children diagnosed with cancer. 35th Scientific Meeting of the Clinical Oncology Society of Australia (COSA-IACR-ANZGOSA). Published Abstract: Asia-Pacific Journal of Clinical Oncology. Sydney, Australia.
Wakefield CE, McLoone JK, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. (2008). Psychosocial issues following recent childhood cancer treatment completion: A systematic literature review and guidelines for end-of-treatment support. COSA – IACR Joint Scientific Meeting, Sydney, Australia.
Wilson CL, Cohn RJ, Johnston K, Ashton LJ. (2008). Second malignancies and late mortality among survivors of childhood cancer. COSA – IACR Joint Scientific Meeting, Sydney, Australia.
Cohn RJ, Wilson CL, Johnston K, Ashton LJ. (2009). Mortality in 5-year survivors of Childhood Cancer. ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Lenthen K, Wakefield CE, McLoone JK, Cohn RJ. (2009). Completing Childhood Cancer Treatment and the Psychological Impact: A Milestone or Millstone with Families. ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Bandopadhayay P, Ashley A, Downie P, Kirby M, Cohn RJ, Sullivan M, Houlihan J, Hassall T. (2009). ANZCCSG BabyBrain 99; Intensified Systemic Chemotherapy, Second Look Surgery and Involved Field Radiation in Young Children with Central Nervous System Malignancy ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Wright F, Daly G, Bryne L, Fischmann A, Ziegler D, Senner A, Cohn RJ. (2009). An effective intervention targeting patient safety at the beside. ANZCHOG Annual Scientific Meeting, Adelaide, Australia.
Cohen JE, Wakefield CE, Gawthorne R, Cohn RJ. (2009). Dietary intakes and parent feeding practices of children who have completed treatment for cancer. 41st Annual meeting of the International Society of Paediatric Oncology, Sao Paulo, Brazil.
McLoone JK, Wakefield CE, Lenthen K, Butow P, Cohn RJ. (2009). Finishing cancer treatment: The positives and negatives for adolescents and their families. 36th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting. Asia-Pacific Journal of Clinical Oncology, Gold Coast, Australia.
Wakefield CE, McLoone JK, Lenthen K, Butow P, Cohn RJ. (2009). Finishing cancer treatment: The positives and negatives for adolescents and their families. Coast Association TOW Research Awards.
Wakefield CE, McLoone JK, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. (2009). The psychosocial impact of completing childhood cancer treatment: A systematic review of the literature and guidelines for end of treatment support. UNSW Research Showcase: Well-being.
McLoone JK, Wakefield CE, Goodenough B, Lenthen K, Cairns DR, Cohn RJ. (2009). Completing childhood cancer treatment: A review of the psychosocial literature and guidelines for end-of-treatment support. 11th World Congress of Psycho-Oncology, London, England.
Pasquale Barbaro, Karen Johnston, Richard Cohn, Luce Dalla Pozza, Glenn Marshall, David Ziegler. (2010). Reduced incidence of second malignancies in childhood Hodgkin’s Disease treated with chemotherapy only. Oral Presentation, ANZCHOG 2010
Wakefield CE, McLoone JK, Fleming C, Butow P, Cohn RJ. (2010). ‘Suddenly he’s dropped from an ‘A’ student to a ‘C’’: A qualitative investigation of the educational experiences and concerns of young cancer survivors and their families. Asia-Pacific Journal of Clinical Oncology, 2010; 6(3): 252. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Wakefield CE, Butow P, Lenthen K, Cohn RJ. (2010). Translating research results into practice, and fast: An example from paediatric oncology survivorship research. Asia-Pacific Journal of Clinical Oncology, 2010; 6(3): 229. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Cohen J, Wakefield CE, Fleming C, Cohn RJ. (2010). A qualitative study of parent attitudes to nutrition after completion of their child’s cancer treatment. Asia-Pacific Journal of Clinical Oncology, 6(3): 205. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Sansom-Daly UM, Peate M, Wakefield CE, Bryant RA, Cohn RJ. (2010). How to cope with being ‘cured’: A systematic review of current psychological interventions for adolescents and young adults living with cancer, compared with the state of the art in other chronic illnesses. Asia-Pacific Journal of Clinical Oncology, 2010; 6(3): 201. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Thomas D, Mok K, Palmer S, Patterson P, Thompson K, Cohn RJ. (2010). A new way to support AYAs and their families beyond cancer treatment: Protocol of a phase II cluster-randomised trial of “ReCapTure LiFe: Skills for Survivorship”. Asia-Pacific Journal of Clinical Oncology, 2010; 6(3): 247. 37th Clinical Oncological Society of Australia (COSA) Annual Scientific Meeting, Melbourne, Australia.
Cohen J, Wakefield CE, Fleming C, Cohn RJ. (2010). Parent attitudes to nutrition and physical activity after completion of their child’s cancer treatment. (2010). Australian New Zealand Children’s Haematology and Oncology Group (ANZCHOG) Annual Scientific Meeting, Sydney, Australia.
Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Thomas D, Mok K, Palmer S, Patterson P, Thompson K, Cohn RJ. (2010). “ReCapTure LiFe” - A Novel Psychoeducational Intervention to Support Young Cancer Survivors and their Families Beyond Cancer Treatment. Protocol of A Phase II Cluster-Randomised Controlled Trial. Australian New Zealand Children’s Haematology and Oncology Group (ANZCHOG) Annual Scientific Meeting, Sydney, Australia.
Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Thomas D, Cohn RJ. (2010). Evaluating the Feasibility and Efficacy of ReCapTure LiFe: A Novel Psychological Intervention for AYAs and their families. Protocol of A Phase II Cluster-Randomised Controlled Trial. Sydney Cancer Conference, Sydney, Australia.
Wakefield CE, McLoone JK, Mok K, Peate M, Thomas EJ, Sansom-Daly UM, Butow P, Cohn RJ. (2010). Health-related decision-making in the context of adolescents with cancer: A pilot study. 7th Annual Scientific Conference of the Australasian Society for Behavioural Health and Medicine (ASBHM), Gold Coast, Australia.
McLoone JK, Wakefield CE, Lenthen K, Butow P, Cohn RJ. Getting back on the bus: a qualitative evaluation of adolescents’ return to school after completing cancer treatment. 7th Annual Scientific Conference of the Australasian Society for Behavioural Health and Medicine (ASBHM), Gold Coast, Australia.
Cohen J, Wakefield CE, Fleming C, Cohn RJ. (2010). Parental control and dietary intake of childhood cancer survivors. Coast Association TOW Research Awards. Sydney
Sansom-Daly UM, Bryant RA, Wakefield CE, Cohn RJ. (2010). When cure is not enough: A discussion of the mechanisms underpinning distress and adaptation in young cancer survivors. Abstract submitted for oral presentation at The Third Annual Sydney Postgraduate Psychology Conference.
Sansom-Daly UM, Wakefield CE, Bryant RA, Butow P, Thomas D, Mok K, Palmer S, Patterson P, Thompson K, Cohn RJ. (2010). “ReCapTure LiFe” - A Novel Psychoeducational Intervention to Support Young Cancer Survivors and their Families Beyond Cancer Treatment. ANZCHOG Annual Scientific Meeting, Long-Term Follow-Up Professional Day.
Wakefield CE, McLoone JK, Fleming C, Butow P, Daniel G, Cohn RJ. (2011). Perceptions of support received and needed by families of childhood cancer survivors recently off treatment. World Cancer Congress, Dalian, China.
Wakefield CE, McLoone JK, Yoong SL, Cohn R. (2011). On-ward sleep experiences of parents of children with cancer. Asia-Pacific Journal of Clinical Oncology, 7, 158-159. Clinical Oncological Society of Australia (COSA), 38th Annual Scientific Meeting. (Awarded $1000 travel grant from COSA), Perth, Australia.
McLoone JK, Wakefield CE, Fleming CAK, Cohn RJ. (2011). School (Re) Entry After Paediatric Cancer: A Qualitative Examination. 13th Annual World Congress of Psycho-Oncology, Antalya, Turkey.
Wakefield CE, Drew D, Ellis S, Cohn RJ. (2011). Meeting the information needs of grandparents of children with cancer. 43rd Annual meeting of the International Society of Paediatric Oncology, Auckland, New Zealand.
Wakefield CE, McLoone JK, Yoong SL, Cohn RJ. (2011). How much sleep are parents getting on the pediatric oncology ward? 43rd Annual meeting of the International Society of Paediatric Oncology, Auckland, New Zealand.
Cohen J, Wakefield CE, Fleming CAK, Cohn RJ. (2011). Parent reported food preferences of childhood cancer survivors. 43rd Annual meeting of the International Society of Paediatric Oncology, Auckland, New Zealand.
Cohen J, Wakefield CE, Fleming CAK, Cohn RJ. (2011). Parental attitudes toward nutrition during and after childhood cancer treatment. 43rd Annual meeting of the International Society of Paediatric Oncology, Auckland, New Zealand.
Wakefield CE, McLoone JK, Fleming CAK, Butow P, Daniel G, Cohn RJ. (2011). Perceptions of support received and needed by families of childhood cancer survivors recently off treatment. 8th Annual Conference of the American Psychosocial Oncology Society, Anaheim, USA.
Drew D, Wakefield CE, Punch D, Ellis S, Cohn RJ. (2012). From the hospital bed to the classroom – Connecting children with cancer using online videoconferencing. 9th Annual Conference of the American Psychosocial Oncology Society (APOS), Miami, USA.
Drew D, Wakefield CE, Ellis S, Cohn RJ. (2012). ‘The forgotten caregivers’: Information and support needs of grandparents of children with cancer.. 9th Annual Conference of the American Psychosocial Oncology Society (APOS), Miami, USA.
Cohen J, Wakefield CE, Fleming CAK, Cohn RJ. (2012). Enteral nutrition use in a clinical setting: misconceptions and attitudes. 16th International Congress of Dietetics, Sydney, Australia.
TEACHING CONTRIBUTIONS
Undergraduate medical students:
Paediatric medical and ILP students attend ward rounds, outpatients, multidisciplinary meetings and other academic meetings.
Phase 2 students – supervision of clinical skills tutorial – chronic illness and adolescence
Phase 3 students attend ward rounds (clinical skills and patient management) and outpatients when attached to Oncology. 2008-2009.
Post graduate paediatric registrar and Fellow trainees:
Daily teaching ward rounds/ Supervision in ambulatory clinic
Preparation/tutorials for the written and clinical examinations of the RACP
Supervision of training and projects and mentoring for the FRACP
Mentoring of registrars to publish research – 7 published papers
Fellows whom I mentored are now Consultant Oncologists in Sydney, Auckland, Newcastle, Jordan. Contribution to training of next generation of child cancer specialists.
Sydney Children’s Hospital. Late effects of childhood cancer therapy. Diploma of Paediatrics. Annual. Post graduate Students
Sydney Children’s Hospital. Late effects of childhood cancer therapy. FRACP. Annual. FRACP candidates
Sydney Children’s Hospital. Leukaemia in children. . FRACP. Annual. FRACP candidates
Sydney Children’s Hospital. Update on paediatric haematology / oncology. SCH Paediatrics Course. General Paediatricians.
Grand Rounds –POW Long-term Follow-up of Adult Survivors of Childhood Cancer
SUPERVISORY RESPONSIBILITIES (RESEARCH-RELATED)
Supervisor. NHMRC Post Doctoral Training Fellow. Dr Claire Wakefield. Clinical Research Fellowship 2009 -2012.
PhD students
- Co-supervised with Lesley Ashton Carmen Wilson – PhD awarded 2009. (thesis: The late effects of therapy in an Australian cohort of childhood cancer survivors” ).
- Co-supervised with Lesley Ashton. Anthea Fergusson – PhD awarded 2010. (Gene Polymorphisms Influencing the Cause and Disease Outcome of Childhood Central Nervous System Tumours).
- Co primary -supervisor with Belinda Goodenough. Jennifer Sunneson –PhD awarded 2011 (thesis: An investigation of long-term PTSD, PTSS, psychological distress, and posttraumatic growth, and a test of the applicability of a cognitive model of PTSD to cancer survivorship and posttraumatic growth)
- C0-supervisor -Ursula Sansom-Daly – psychology – commencing October 2009 ( co-supervision with Richard Bryant and Claire Wakefield)
- Primary supervisor -Catharine Fleming – Dietetic and exercise behavioral intervention for cancer survivors – commencing February 2011 (co-supervision with Claire Wakefield and Jennifer Cohen)
- Co-supervisor - Leigh Kurth – commencing April 2012 Project: Meeting the needs of bereaved parents in Australia
ILP students
- Primary supervisor - Damitha Fonseka (2008) – (project - Non-Invasive Evaluation of Late Anthracycline Cardiac Toxicity in Childhood Cancer Survivors)
- Co-primary supervisor - Shivany Gnaneswaran (2010) – (project - A retrospective cohort study of reproductive outcomes in female long term survivors of childhood cancer)
- Primary supervisor -Jacqueline Nicholson (2010) -(project - Incidence and severity of Postoperative cerebellar mutism Syndrome in children with Medulloblastoma)
- Co-supervisor Lorraine Cheung (2011) –(project- Neuropsychology reports for childhood brain tumour survivors: Translation of cognitive and academic recommendations into the home and school)
- Co-supervisor Enoch Foong (2011) - To describe the prevalence and risk factors for cardiovascular diseases (CVD) among the an Australian cohort of childhood cancer survivors).
- Co-primary supervisor - Ada Chan. (2011). – (project - Assessment of taste and smell function in long-term survivors of childhood cancer)
- Co-supervisor –Nadia Evans (2012) – (project - The psychological impact of receiving a cancer diagnosis in childhood: Parental experiences)
- Primary supervisor - Claire Purvis (2012) – project- Childhood cancer treatment and parents’ perceptions of sleep quality and quantity.
Practice improvement or quality projects leading to other outputs
Parents/Community:
Kids Cancer update:
For the past 5 years I have organized an education day for parents and patients which has been very well received. The day has included video conference lectures by overseas
speakers whom I have invited and organized the facilities. For the past 3 years I have arranged for rural families to participate by using Teleheath facilities at their local hospital.
Family Handbook:
Compiling and editing parent handbook which is given to all newly diagnosed families in the KCC provides information about diseases, treatment and facilities in lay language.
Medication Safety: Pharmacists utilise IIMS to improve medication safety for children with cancer. Baxter health Awards 2008.
Shared-care management of “Fever and Neutropenia” in children with cancer (2011). Project completed with Clinical Excellence Commission as part of the Clinical Leadership Program
Committees, executive positions and editorial boards
University/Hospital/College and Community Committees:
Sydney Children's Hospital, Randwick
- Clinical Director –Medicine, Sydney children’s Hospital (2008 to date)
- Management Group, Sydney Children’s Hospital (2008 to date)
- MADAAC – medical appointment and credentialing committee (2008 to date) (representing Medical Directorate, medical Staff council and UNSW).
- CIRC –critical incident review committee (2008 to date)
- SCHN (Randwick) – SESI Clinical Advisory committee (2008 to date)
- SEALS Pathology Cluster Management Committee (2008 to date)
- Chairman, Brain Tumour Collaborative, Sydney Children’s Hospital, (2003 to date).
- Telehealth/E-Health Working Party, (1998 to date (Chairman)).
- Cytotoxic Steering Committee, (1998 to date).
- Drug Utilisation Review Committee, (1997-2004).
- Services Committee, Children’s Cancer Institute Australia, (1998-2003).
- Best Practice Committee, (Clinical Pathways), (2001-2004).
- High Cost drug working party (2006).
University of New South Wales
Associate professor of Paediatrics
Co-Director, NSW Cancer Survivor Centre, UNSW
Royal Australian College of Physicians
E-Health Committee
Australian and New Zealand Children’s Haematology Oncology Study group
Co-chair, Cancer Survivorship Committee
Convener, Late effects workshop. # June 2009, Adelaide
Convener, Cancer Survivorship Workshop, September, 2010
NSW Cancer Institute:
Member child and adolescent oncology group (2003 –present)
Chairman, special subcommittee on Cancer Survivorship project 2007-2008
Member, neuro-oncology group (2003 -2008)
International Society of Paediatric Oncology (SIOP). Member since 1987.Committee member, Committee for Supportive Care of childhood cancer patients.
Children’s Oncology Group, USA
Investigator and member, (2000 to date).
American Society of Pediatric Hematology and Oncology (ASPHO). Member since 2000.
Charity and Advisory Boards
Represent the interests of children and their families who are treated for cancer and blood diseases, and involved in fund raising.
- Trustee, Board of Trustees, Malcolm Sargent Fund for Children in Australia, (1998–2004).
- Regional Counselor, Redkite Charity, NSW, (2005 to date).
· Medical Advisor, Sydney children’s Hospital Foundation Joshua Holland Leukaemia Fund, (2000 to date).
· Scientific Advisory Committee, Cure for Life Foundation, (2006-2008).
· Board member, Sydney Cord Blood Bank Foundation (2012 to date)
REVIEWER FOR THE FOLLOWING JOURNALS:
Pediatric Hematology Oncology
Journal of Paediatrics
Medical Journal of Australia
Pediatric Blood and Cancer
Asia Pacific Journal of Clinical Oncology
PRIZES AND AWARDS
Arthur Robertson Travelling Fellowship of the University of the Witwatersrand – attached to the Departments of Haematology/ Oncology, Children’s Hospital of Los Angeles (August - September, 1981), and Haematology, John Radcliffe Infirmary, Oxford, England, (October –December, 1981).
FOYSA (Four Outstanding Young South Africans) Award Awarded by Jaycees “to honour individuals who have surpassed the average and through application, dedication and foresight have achieved where others fail or accept mediocrity and have contributed meaningfully to the collection of peoples comprising South Africa”. 1987.
Paul Harris Fellow. Awarded by The Rotary Foundation of Rotary International “in appreciation of tangible and significant assistance given for the furtherance of better understanding and friendly relations between peoples of the world”. 1987.
Medical Media Awards. Excellence in the Field of Medicine Award. 2008.