Childhood skin cancer syndromes

Australia has the highest rate of skin cancer in the world. Melanoma is the most common cancer in Australian adolescents. However, there are no existing clinical services for the diagnosis and management of paediatric, adolescent, and genetic skin cancer in Australia.
 
There are several genetic disorders which increase the risk of skin cancer in childhood and adolescence, with substantial negative consequences. New research being conducted by Sydney Children's Hospital and UNSW Sydney aims to identify the psychosocial impacts and supportive care needs of children and their carers, with a skin cancer diagnosis or a genetic skin cancer syndrome. 
 
This information is essential to develop tailored comprehensive clinical services to address not only the medical diagnosis and treatment needs of paediatric skin cancer patients, but also their supportive care needs. 

who can participate?

  • Parents/carers of children or adolescents who has been diagnosed with a skin cancer, or a related genetic syndrome.
  • Children (aged 5-18 years) who has been diagnosed with a skin cancer, or a related genetic syndrome.
WHAT WILL IT INVOLVE?
  • You (or your child) will be interviewed via telephone or Zoom at a time convenient to you. 
  • The interview will discuss how skin cancer has impacted your lives, your concerns, information needs, and preferences for care.

note:

You are welcome to chose who in your family you would like to participate. That is, just one of you might feel comfortable talking to the research team, or you might feel it is important for everyone's perspectives to be heard. It is completely up to you. 

how do i participate?

To get involved, please email the research lead, Dr Jordana Mcloone
Email: J.Mcloone@unsw.edu.au

Participant information sheet and consent form 

This information will be added once approved by ethics. pisc_230427.docx